My friend’s blog post–this one here–was just Freshly Pressed by WordPress. It’s a beautiful read and that’s why I’m sharing it here.
Life with my son Colin brings friends back to me—friends who taught me things it took Colin’s autism to wrench into sharper focus. The roots of preparation run deep. My past, if I let it, comes back to show me things I missed the first time around.
In 1990, my friend Nickle Lauritzen was diagnosed with Motor Neuron Disease, a rare form of Muscular Dystrophy, similar to Lou Gehrig’s Disease, a terminal disease that works inward from the extremities—first the hands, then feet, legs, and arms—muscle strength and control gradually failing until you fight for every breath and finally suffocate. Nickle would describe her predicament in just such harsh terms. She wanted the bare truth out there where she could keep an eye on it. “I know how I’m going to die,” she told me soon after we met, before I really understood her illness or knew her well at…
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